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Development of best practice recommendations to enhance access to and use of formal community care services for people with dementia in Europe: a Delphi process conducted by the Actifcare project

Røsvik, Janne orcid logoORCID: 0000-0003-2509-3744, Michelet, Mona orcid logoORCID: 0000-0003-3457-8145, Engedal, Knut orcid logoORCID: 0000-0001-5304-2018, Bergh, Sverre orcid logoORCID: 0000-0001-9593-2967, Bieber, Anja, Gonçalves-Pereira, Manuel orcid logoORCID: 0000-0003-1419-1306, Portolani, Daniel M. orcid logoORCID: 0000-0002-8528-1483, Hopper, Louise orcid logoORCID: 0000-0002-9382-5241, Irving, Kate orcid logoORCID: 0000-0002-9255-4574, Meyer, Gabriele orcid logoORCID: 0000-0002-3188-2902, Marques, Maria J. orcid logoORCID: 0000-0001-9214-4180 and Sjølund, Britt-Marie orcid logoORCID: 0000-0002-4621-3816 (2020) Development of best practice recommendations to enhance access to and use of formal community care services for people with dementia in Europe: a Delphi process conducted by the Actifcare project. Aging and Mental Health, 25 (12). pp. 2298-2309. ISSN 1360-7863

Abstract
Objectives: Home-dwelling people with dementia and their informal carers experience barriers impeding access to community care services. This study is a part of the Actifcare project where eight countries participated. The aim was to achieve consensus on best practice recommendations for enhancing access to and use of formal community care services. Method: A Delphi consensus process was conducted. A total of 48 professional experts, 14 people with dementia and 20 informal carers rated the importance of 72 statements on a 7-point Likert scale. Consensus was based on the median and level of dispersion. Results: Sixty-two statements reached consensus, resulting in three categories of recommendations. An appointed contact person was central in Recommendations to enhance access. Coordination and flexibility in setting and type of services were among the Recommendations to enhance use. Training of health care personnel and person-centred care were central Recommendations that can facilitate access or use indirectly. Conclusion: The Actifcare Best Practice Recommendations suggest practical measures that can be taken bydecision makers to enhance access and use of community care services, and there by enhance quality of care and quality of life for home dwelling people with dementia and their informal carers. Abbreviations: Actifcare: ACcess to TImely Formal Care; AE: Alzheimer Europe;; EWGPWD: European Working Group of People with Dementia;; GP: General Practitioner.
Metadata
Item Type:Article (Published)
Refereed:Yes
Uncontrolled Keywords:Dementia; access; services; Delphi process; consensus; best practice
Subjects:UNSPECIFIED
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Science and Health > School of Nursing and Human Sciences
Publisher:Routledge (Taylor & Francis)
Official URL:https://dx.doi.org/10.1080/13607863.2020.1822286
Copyright Information:© 2020 The Authors. Open Access (CC-BY 4.0)
Funders:EU Joint Programme- Neurodegenerative Disease Research (JPND) project
ID Code:27593
Deposited On:19 Aug 2022 13:49 by Thomas Murtagh . Last Modified 01 Mar 2023 14:23
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