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Privacy-aware sharing and collaborative analysis of personal wellness data: Process model, domain ontology, software system and user trial

Tuovinen, Lauri orcid logoORCID: 0000-0002-7916-0255 and Smeaton, Alan F. orcid logoORCID: 0000-0003-1028-8389 (2022) Privacy-aware sharing and collaborative analysis of personal wellness data: Process model, domain ontology, software system and user trial. PLoS ONE, 17 (4). ISSN 1932-6203

Abstract
Personal wellness data collected using wearable devices is a valuable resource, potentially containing knowledge that goes beyond what the device and its the associated software application can tell the user. However, extracting such knowledge from the data requires expertise that an average user cannot be expected to have. To overcome this problem, the data owner could collaborate with a data analysis expert; for such a collaboration to succeed, the collaborators need to be able to find one another, communicate with one another and share datasets and analysis results with one another. In this paper we presents a process model for such collaborations, a domain ontology and software system developed to support the process, and the results of a user trial demonstrating collaborative analysis of sleep data. Unlike existing collaborative data analytics tools, the process and software have been specifically designed with the non-expert data owner in mind, enabling them to control their data and protect their privacy by selecting the data to be shared on a case-by-case basis. Theoretical analysis and empirical results suggest that the process and its implementation are valid as a proof of concept.
Metadata
Item Type:Article (Published)
Refereed:Yes
Uncontrolled Keywords:Privacy, data sharing
Subjects:Computer Science > Information storage and retrieval systems
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Engineering and Computing > School of Computing
Research Initiatives and Centres > INSIGHT Centre for Data Analytics
Publisher:Public Library of Science
Official URL:https://dx.doi.org/10.1371/journal.pone.0265997
Copyright Information:© 2022 The Authors.
Funders:European Union’s Horizon 2020 research and innovation programme, Marie Sklodowska-Curie actions, grant agreement number 746837. http://ec.europa.eu/research/mariecurieactions/ AS is partly-supported by Science Foundation Ireland (SFI), grant number SFI/12
ID Code:27332
Deposited On:29 Jun 2022 09:43 by Alan Smeaton . Last Modified 23 Mar 2023 15:19
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