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Mapping the lived experiences of intersex/variations of sex characteristics in Ireland: contextualising lay and professional knowledge to enable development of appropriate law and policy

Ní Mhuirthile, Tanya orcid logoORCID: 0000-0001-8660-0012, Feeney, Maria orcid logoORCID: 0000-0003-3305-637X, Duffy, Mel orcid logoORCID: 0000-0001-8091-7406 and Staines, Anthony orcid logoORCID: 0000-0001-9161-1357 (2022) Mapping the lived experiences of intersex/variations of sex characteristics in Ireland: contextualising lay and professional knowledge to enable development of appropriate law and policy. Project Report. Dublin City University. ISBN 978-1-911669-38-8

Abstract
Intersex is an umbrella term for people born with atypical variations of sex characteristics (I/VSC) estimated to be between 0.5% and 1.7% the population according to the UN. This report is novel as it uncovers the lived experiences of those with I/VSC, their partners and the health care professionals who care for them in Ireland. It will sets this analysis in the context of the legal response to I/VSC in order to determine how Ireland meets in obligations towards those with I/VSC. This report brings together an understanding of I/VSC from the perspectives of sociology, medical and legal disciplines which is unique in the study of I/VSC. It paints a comprehensive picture of the current state of I/VSC in Ireland.
Metadata
Item Type:Monograph (Project Report)
Refereed:No
Uncontrolled Keywords:variations of sex characteristics; disorder of sex development; atypical sex characteristics; diverse sex development; differences of sex development; body difference, lived experiences; hermeneutic phenomenology; human rights; trauma; harm; childhood trauma; stigma; shame; torture; gender based violence; medical records; privacy; discrimination; differences; policy, law reform; 5-Alpha Reductase Deficiency (ARD); Ambiguous Genitalia; Androgen Insensitivity Syndrome (AIS); Complete Androgen Insensitivity Syndrome (CAIS); Partial Androgen Insensitivity Syndrome (PAIS); Congenital Adrenal Hyperplasia (CAH), Gonadal Dysgenesis (partial & complete); Hypospadias; Jacobs/XYY Syndrome; Kallman Syndrome, Klinefelter syndrome (KS) also known as XXY/47; Mayer-Rokitansky-Küster-Hauser (MRKH), Micropenis; Mosaicism involving “sex” chromosomes; Ovo-testes; Polycystic Ovarian Syndrome; Progestin Induced Virilisation; Swyer Syndrome; Turner’s Syndrome (one X chromosome); XY-Turner’s Syndrome
Subjects:Medical Sciences > Health
Medical Sciences > Medical ethics
Medical Sciences > Psychology
Social Sciences > Education
Social Sciences > Law
Social Sciences > Social psychology
Social Sciences > Sociology
Social Sciences > Gender
Social Sciences > Identity
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Science and Health > School of Nursing, Psychotherapy & Community Health
DCU Faculties and Schools > Faculty of Humanities and Social Science > School of Law and Government
Publisher:Dublin City University
Copyright Information:2022 The Authors. (CC-BY 4.0)
Funders:Irish Research Council, Project Number: IRC Coalesce 2019/156
ID Code:26873
Deposited On:31 Mar 2022 13:36 by Tanya Ni Mhuirthile . Last Modified 31 Mar 2022 13:36
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